Remicade RoundUp
130 Members
Created by Taylor B

Remicade RoundUp

Welcome to Remicade RoundUp!

This community is for individuals who are currently using Remicade as a treatment, those who are considering using Remicade, individuals who have used this treatment in the past, and those that can give input, advice or support in regards to the infusion treatment plan. Share your stories, your advice and encouragement and meet others like yourself.

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REMICADE is an advanced treatment that has been shown to have substantial benefits in patients with a number of inflammatory disorders involving the immune system. REMICADE targets specific proteins in the body's immune system to help control the development of inflammation, significantly reducing painful symptoms in diseases such as plaque psoriasis, rheumatoid arthritis, psoriatic arthritis, adult Crohn’s disease, pediatric Crohn’s disease, ulcerative colitis, and ankylosing spondylitis.

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Results 1 - 10

  • cath

    I am waiting for the phonecall to go to the hosp for my first infusion....so the more info i can get, the better i know im gonna feel,.......

    5 months ago

  • Jeremy

    Your welcome, if you have any questions on it let me know. I will try to help from what I have expierence!

    9 months ago

  • Taylor

    Thanks Jeremy!! I'm gonna have to look into that!

    9 months ago

  • Jeremy

    Just an FYI for everyone on remicade, there is a program that remicade provides called remistart that remburses for some of the expenses that are incurred with the infusions. To get started on remistart just type remistart enrollment form into any search engine. This will bring up the form and it has instuctions on what to do from here. Hope this helps.

    9 months ago

  • Taylor

    I think that marybeth had a portacath for a while, I can't remember though!!!! Sometimes I wonder why I don't have track marks yet LOL, althought I get mine every 8 wks rather than 4. I hope your bruisies heal up soon.

    9 months ago

  • Courtney

    does anyone have a portacath for their remicade?  getting remicade every 4 weeks - I have a permanent iv bruise line - it's disgusting and an anesthesiologist recommended a portacath... any thoughts??!! 

    9 months ago

  • Sandra

    I am new to this community, I had my first infusion a week ago and did have a little relief from the flare. Reading through here andwhat others have gone through, it has already answered alot of my questions easing my worries.

    12 months ago

  • Kat

    Ive been taking Remicade for about five years and it works for me..no pain, weight gain, fewer bathroom trips...it is worth finding out about if you are tired of pills, etc.

    12 months ago

  • Nichole

    Hey Jay,

    Well this is how mine seem to go. I go to the infusion center (the first time they take your name and information, weigh you and such). Then you get to sit in this big comfy reclining chair (kinda like a lazy boy). They take your temp and blood pressure before they start. Your IV is injected and your given a normal saline drip, then they put the remicade on and it takes about 2 hours to get it all into you. The first few times they ask you to stay for 30 mins after the procedure to make sure your ok. You can sign a waiver and leave earlier if your fine. Theres usually 3-5 others getting it too. Where I go theres a TV in the room and we all agreed to watch a movie. Oh and the nurses take your temp and blood pressure every 15mins. Oh and they have free juice and cookies at most of the centers. I'd suggest bringing a book or something to do while there.

    13 months ago

  • Jay

    Yeah I'm hoping things will go well.  Anybody want to explain the process to me.  My doc said its supposed to take three and half hours.  Am I just going to sit there while it gets pumped in for that long??  Is there anything I should be worried about/should know?  I hope theres a tv!

    Basically if somebody could explain how their infusions go that would be really helpful. 

    Thanks...

    14 months ago