WeAreCrohns.org - The Social Support Network for People Living with Crohn's Disease and Colitis

Susie

financial assistance help!!! my insurance is a little different and the $5.00 program is not something i am eligable for. the two places for "funds" do not have any. please send any info you might have on humira assistance!!!

last month

Ashley

Hello Humira users yesterday a friend on here posted me & mentioned that even if you have insurance you can call Humira & get signed up for free & instead of having to pay like I was Co-pay $20.00 they send a card to you & you give your number on it to your Insurance Co. then only have to pay $5.00 I did that today woo hoo!

4 months ago

Ashley

Side Effects of Humira

Side Effects of This Medicine

Along with its needed effects, a medicine may cause some unwanted effects. Although not all of these side effects may occur, if they do occur they may need medical attention.

Also, because of the way these medicines act on the body, there is a chance that they might cause other unwanted effects that may not occur until months or years after the medicine is used. These may include certain types of cancer, such as bladder or skin cancer. Discuss these possible effects with your doctor.

Check with your doctor immediately if any of the following side effects occur:
   * More common
       * Abdominal fullness;  body aches or pain ;  cough or hoarseness;  ear congestion;  gaseous abdominal pain;  infection;  lightheadedness
   * loss of voice;  lower back or side pain;  muscle aches and pains;  nasal congestion;  pain or tenderness around eyes or cheekbones;  rapid sometimes shallow breathing;  runny nose;  shivering;  stuffy nose;  sunken eyes;  thirst;  trouble sleeping;  warmth on skin;  wrinkled skin
       * Less common
           * Abdominal pain;  abnormal vaginal bleeding or discharge;  agitation;  anxiety;  arm, back, or jaw pain;  a sore on the skin of the breast that doesn't heal;  back pain;  black, tarry stools;  bleeding from gums or nose;  blindness;  bloating or swelling of face, arms, hands, lower legs, or feet ;  blood in stool or change in bowel habits;  bloody or cloudy urine;  blurred vision ;  broken bones;  change in size, shape, or color of an existing mole;  change in skin color;  chest tightness or heaviness;  chest pain;  chills;  clear or bloody discharge from nipple;  cold hands and feet;  confusion;  constipation ;  cough;  coughing or spitting up blood;  decreased urination;  decreased vision;  depression;  difficulty, burning, or painful urination;  difficult or <http://arthritis-symptom.com/arthritis-drugs/humira.htm#>frequent urination;  dimpling of breast skin;  difficulty breathing;  drowsiness;  eye pain;  fainting;  fast, slow or irregular heartbeat;  fever;  forgetfulness;  frequent urge to urinate ;  general feeling of illness; <http://arthritis-symptom.com/arthritis-drugs/humira.htm#>hair loss;  hallucinations;  headache;  increased thirst;  inverted nipple;  irregular breathing;  irregular pulse;  irritability;  itching;  light colored stools;  loss of appetite;  lump in breast or under your arm;  lump or swelling in the abdomen;  mole that leaks fluid or bleeds;  mood or mental changes;  muscle cramps or spasms;  nausea;  new mole;  night sweats;  no blood pressure or pulse;  noisy breathing;  numbness or tingling in your arms, legs, or face;  pain, redness, or swelling in arms or legs without any injury present;  pale skin;  persistent non-healing sore on your skin;  pink growth;  raised, firm, bright red patch;  rash;  redness or swelling of the breast;  seizures;  sharp back pain just below your ribs;  shiny bump on your skin;  shortness of breath;  slurred speech or problems swallowing;  sneezing;  sore throat;  sores, ulcers, or white spots on lips or mouth;  spitting up blood;  stiff neck;  stopping of the heart;  sudden high fever or low grade fever for months;  sweating;  swelling of the face, fingers, feet, or lower legs;  swollen glands;  swollen neck veins;  tightness in chest ;  tiredness;  trouble breathing with activity;  trouble thinking;  unconsciousness;  unexplained bruising or bleeding ;  unpleasant breath odor;  unusual tiredness or weakness;  unusual weight gain or loss;  visual disturbances;  vomiting;  vomiting of blood or material that looks like coffee grounds;  yellow skin or eyes
   Other side effects may occur that usually do not need medical attention. These side effects may go away during treatment as <http://arthritis-symptom.com/arthritis-drugs/humira.htm#>your body adjusts to the medicine. However, check with your doctor if any of the following side effects continue or are bothersome.
       * More Common
           * Bladder pain;  bleeding;  blistering;  burning;  coldness;  discoloration of skin;  feeling of pressure;  general feeling of discomfort or illness;  hives;  infection ;  inflammation;  joint pain ;  large amount of cholesterol in your blood;  large amount of fat in your blood;  lumps;  numbness;  pounding in the ears;  redness;  scarring ;  soreness;  stinging;  swelling;  tenderness;  tingling; ulceration;  warmth
       * Less common
           * Abnormal <http://arthritis-symptom.com/arthritis-drugs/humira.htm#>healing; decrease in height ;  difficulty in moving;  difficulty in walking;  difficulty swallowing;  dry mouth;  heartburn;  indigestion;  loss of hearing;  loss of strength or energy;  menstrual changes;  muscle or joint stiffness, tightness, or rigidity;  muscle pain or stiffness;  muscle pain or weakness;  pain in back, ribs, arms, or legs;  pain or burning in throat;  passing of gas;  shakiness in legs, arms, hands, and feet;  sores;  stomach pain, fullness, or discomfort ;  swelling or redness in joints;  weakness
   Other side effects not listed above may also occur in some patients. If you notice any other effects, check with your doctor

5 months ago

Ashley

Check with your doctor immediately if any of the following side effects occur:

   More common side effects are:

•  Abdominal fullness;  body aches or pain, ear congestion; 



• gaseous abdominal pain; 



•  constipation ;(sometimes)

hair loss

unpleasant breath odor;

loss of strength or energy;

stomach pain, fullness,

 

I copied this from a long list of side effects common & less common these are sometimes some of  the things I get from Humira. But it has taken my constant pain I was having

 

5 months ago

Ashley

Hi Lisa I have been getting B12 shots for 3 years now 1,000 mgs a month at my Dr's office.

5 months ago

Lisa

Ashley it will take sometime but you will begin to feel better.  For me I had to do the Humira once a week in the beginning.  because like others I would start to flar a few days before the infusion.  I also upped by B12 injections from once a month to bi-weekly and would do them on the same day as my Humira and it seems to help.  If you have been sick for awhile it will take awhile for your body to rebuild its stores enough for you to feel yourself.  I still sometimes get fatigued while on the Humira but sometimes I have to remind myself that even healthy people get drained from time to time.

5 months ago

Ashley

I was wondering something about Humira could just be me, but when I was on Remicade for almost 2 yrs. after my infusion each time I would get a lot of my energy back, until 5 days before I was due again, next as I have written 10 months of Cimzia had to effect on my condition. So Humira worked very quickly for pain I had for so long in the gut, but I still have no energy back at all yet. I know I have only had the 6 inital doses & next one which will just be 1 shot next Thurs. so that will be 7 doses, I have B12 shots every month, take vitamins every day, I have to take script potassium every day, just don't have any energy? Did any of you get your energy back if when Humira worked for you?

5 months ago

Lesley

Back on humira after unsuccessful cimzia treatment.  Hope it starts to work fast

5 months ago

Daniel

well been on it for 8-9 months now been feeling lot better, no major side effects , at first when i took i would nap most day now when i take im fine, still isnt fun taking it but it deff has improved my quality of life :)   i find when i take it im good for week or so then 2-4 days prior to new injection i have good flare ups :(   but id ranther deal with flare ups a few days every two weeks then every day :)

7 months ago

Suraj

Hi Amber. Sorry to hear Humira isnt working for you as well as you would like. You may want to talk to your doc about an alternative course of treatment.

I'd just like to add that Humira has worked wonderfully for me for the past year and a half that I've been on it. I hope researchers learn about what they got right, and improve on it for the next treatment for crohns. Also stem cell research for CD patients sounds really promising. They've already used stem cell treatment to cure legally blind people from corneal disease, and they can now see. cross your fingers people!!

9 months ago