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As This is predominantly a usa website I thought I would Create a Space where We are Crohns users that live in the uk Could come and chat about anything they want to, it could be that your just having a down day and need Cheering up, or you may have some questions about your treatment or your medication, or you may just want to have a General Chat to distract yourself If your Having a bad day because of any Illneses that you may be suffering from. Whatever it's feel free to come into our Quaint and Peacefull Sanctuary where you Can feel Safe and know that your among Friends, if you want to post links to websites that have games on them that you would like to share with other Members or funny a cartoon websites or joke websites to help cheer pepole up then feel free!! This is your space not Mine!! Use it however you want to, if you have used any complimntary therapies and found that the have helped you then please share it, and if you have any information on medications that your taking please share that too!! but above this is space where you can come for help and support and to help and support other suffers as well. but Above all this is also a place to have some FUN IN TOO!!
I am lactose intolerant and most of us are. So I thought that we could have a recipe swap on here. I have alot of milk free recipes that I would like to share. I also have alot for baking wich is good for Christmas. This is my favourite chocolate cake recipe that I would like to share with you. Quick chocolate cake 1/1/2 cups flour 1/3 cup vegetale oil 1/4 cup unsweetend cocoa 1 cup water 1 teaspoon baking soda 1/2 teaspoon vanilla 1/4 teaspoon salt 2 tablespoons of almond liquer (optional) 3/4 cups brown sugar Pre heat oven to 350 and grease a 9 inch cake pan. Sift flour, cocoa, baking soda and salt together. Then add brown sugar stir the dry ingredients together. Mix the oil, water, and vanilla together, then add them to the dry ingredients and stir just yntill moist. bake for thirty minutes.
Hi! and Welcome to Food, Recipes and Nutrition for IBD!! This is a community where we can share recipes, food ideas, and tips on staying healthy. Its not always easy to find things that our bodies can digest properly. By colaborating our ideas i hope to be able to enjoy a wider variety of food items. Please feel free to share a recipe by starting a new "discussion". Please remember that not all recipes are going to be "safe foods" for everyone. Many of us are cooking for our families and not only for IBD. If you have tried a recipe please feel free to review it by adding a comment under it. If anyone has food related questions please also feel free to either ask me, or post your question in the disscusions area. Happy Cooking and Eating everyone!!
My husband and I are running the Crohn’s and Colitis Foundation of America’s (CCFA) Team Challenge Half Marathon in Las Vegas this December to bring attention and increased funds to this worthy cause. Our goal is improved treatment options and, eventually, a cure for Crohn’s disease and ulcerative colitis! In May of 2000, at just 20 years old, Jen was diagnosed with Crohn’s Disease. The last nine years have been spotted with hospitalizations, medical procedures, and two surgeries. But this letter and this race are not about helping just one person. It is estimated that as many as 1.4 million Americans have Crohn's or colitis, also known as IBD, and many more suffer in silence due to potential embarrassment and alienation. We became involved in this race because we believe in the CCFA. As the largest organization dedicated to curing IBD, it has funded more than 1,100 grants for Crohn’s disease and ulcerative colitis research. Support of this race goes toward the CCFA’s mission to improve the quality of life of children and adults affected by IBD. We can make a difference but we need your help! The CCFA has already provided us with a coach, a training program, and teammates. We're committed to a tough training schedule but the hardest part still lies ahead. We need to raise $7,500 for this cause by October 15. With support from our family, friends and community members we believe we can do it. We will do it!!! Please visit our web page to make a donation and to read Jen's story.
This group is for people in Montana with Crohn's disease or ulcerative colitis. We're pretty isolated in Montana and we face many unique challenges. Many with IBD have never met another person with IBD! It's my hope that we can use this online community to meet others in Montana with IBD, and establish not only a virtual community but also a real, face-to-face support and education community. If you are a Montanan, a Cat or a Griz, please join!!
As patients of IBD we often find ourselves in a reclining position, whether that be in a hospital bed, the sofa at home or just resting in a comfy chair. Getting rest comes hand in hand with long term chronic illness. But I have have trouble just sitting around. I find myself, either listening to my I-Pod, watching television or movies. We are all big consumers of media. Its something we can do without over taxing ourselves. So, I have created this community that doesn't have anything to do with Crohn's or Colitis where we can come and talk about the music we love that gets us through just about anything. Or we can talk about TV shows we watch or new movies, or how our favorite teams are doing in the sports we watch. There will be all kinds of areas that we as a community can connect with others who do the same things we do. Have fun in this community, have a good laugh or two, just like you would at the water cooler at your office. This way though you can stay in your jammies and talk about the things you like to do while you are resting.
I recently went under the knife at UCLH hospital in London. My crohns had flared up at 24, i'm 26. I had my first operation which was a case of life or death at 19. I was given aziothioprine and mesalezine which had little or no effect.I had the operation, it was 1000 times more painful then the first one. I was out of the hospital within 1 week. I got an infection after 2 weeks. I went back into hospital. I was out in after 2 days. My crohn's has not been cured by these so called doctors. It has gotten far worse. I have never passed so much blood as i have since i left hospital. My bowel movements have been far worse than ever before. To add to my frustration. I was told that i have permananent staple where my bowels were joined, and i quote 'becuase it's quicker that way'. I was never given the option or informed that they would be using permanent staples on my bowel!!!!!! These staples are now causing me a great deal of discomfort and pain, i can't run, i can't sleep, i can't stand up for too long, i can't be myself. I am livid. I have investigated into LDN, i contacted a doctor in the UK who imprts this for MS patients, he is a MS patient himself and very passionate and knowledgable when it comes to MS. I hope this cures my Crohn's, i now have to see how i can have these staples removed.I would love to hear if anyone else has had such bad treatment.
Welcome! this community is place for us to share food ideas and recipes that work for us. Please Be aware that everyone is different and what works for one person may not work for another. This community is not suggesting that these recipes and food ideas are right for everyone, or anyone for that matter ! LOL. We personally know our bodies better than anyone else, and have to use our best judgment when deciding what to eat. Sometimes its difficult to get creative with the limited ingredients we have to work with, Hopefully this will help!feedback on recipes is encouraged!! Happy cooking!
This group is for our film Rubber Side Down: from the Rockies to the Rock. A Film for the Crohn's and Colitis Foundation. We want to hear from you about where you think a good location would be to screen our film and to tell you about upcoming showings! For all the info on this incredible project go to www.rubbersidedownmovie.com
The 4th of July is around the corner, which normally means all sorts of fun: BBQ's!! Fireworks!! Parades!! Friends & Family!! All topped with a great appreciation for the U.S.A.!With this fun comes some great photos - so go ahead and share your good times with the community!To submit a photo, first become a member of the 4th of July Fun! Community:Once you're a member, you're also set to start submitting photos! But be sure and read the below submission guidelines. Five Simple Rules (Submission Guidelines)1. No inappropriateness.2. You can submit up to five (5) photos per contest.3. You, a family member, or a friend must have taken the photo (no scouring the web for cool photos)!4. You must fully own rights to the photo (again, no scouring the web for cool photos).5. Your photo must fit the contest theme (above).If you have any questions please post them below in the comments section.Have fun! We can't wait to see your entries.
hi i wanted to start a group for mums with crohns or exspectent mums with crohns would liike to know your exsperience wilst being pregnant diffrent meds ect
This is a group for all the teens out there with crohns or colitis to come together and share anything they feel like talking about.
This is a group for those who developed serious kidney problems on mesalazine (Lialda, Rowasa, Pentasa, mesalamine, 5-ASA, Asacol...) that forced them to stop taking it.This is always proclaimed to be such an extremely rare side effect, but there are several of us here on this site that I've met so far. I hope this will be a place we can come to to discuss our options and how our condition evolves.
Michelle Rainey has been living with Crohn's since she was a teenager. In 1996, after her second surgery, Michelle made the decision to abandon the drugs and doctors in exchange for a medicine with real promise for healing IBD: marijauna. Four years later Michelle responded to job listing posted by the Chief of Marijuana Activism, Marc Emery, and in 2001 began working with a group that was soon to be known as the BC3. Michelle was arrested in July 2005 along with Marc Emery and activist Gregory Williams, and began facing the unthinkable: extradition to the USA to serve a federal prison term that would surely be the death of anyone who had suffered with Crohn's as much as Michelle has. After nearly four entire years of asserting her freedom, the extradition nightmare has finally come to an end. Michelle pled guilty last April in exchange for a lenient sentence, and this July will be expected to begin 2 years probation in Canada.. A slap on the wrist compared to what she was originally facing in 2005. Michelle will not be prevented from exercising her rights as a Canadian Medical Marijuana Exemptee throughout the coming two years of American-imposed probation. With the stress of extradition hearings nearly behind her Michelle will once again be able to focus on overcoming Crohn's. Michelle Rainey is a one of a kind example of someone that has not only stepped up to the plate in order to take back her life from Crohn's, she managed to do it while simultaneously standing up against one of the largest monsters in our world today. The US government should have known better than to go after a Crohn's sufferer, there is nothing the DEA can throw at us that could be half as bad as IBD!
From what I can see the ratio of males to females on this site is quite small so I thought I would provide a place for the males to come and bond in brotherhood. A sort of Clubhouse for guys similar to the Family Guy episode where Peter builds his own guy club in the backyard with the typical "No Girls Allowed" sign in the front. It could almost resemble the "He-Man, Woman Haters club" from The Little Rascals except its on the internet and that we don't hate woman, but rather enjoy them.This is a merely a place for guys to be guys. Maybe let off a Tim the Tool Man Taylor grunt everywhile. Have a fictional Beer or Hot Pocket. Swap stories. Give advice. Talk sports. And other "man-ly" topics.For now I'm a little tired so i'll be updating the Clubhouse with various guy worthy topics later.(On a side note, this is not meant to be a place to make fun of women, but rather a look into the male perspective. Females please do not take this the wrong as the intent is only in good fun and you are more than willing to add your input to any conversation put on the Poker Table.)Thanks.JayClub President
A community for those who are actively taking Low Dose Naltreone (LDN) for Crohn's/UC and those who are interested in it as a possible treatment for their Crohn's/UC.
