Crystal 's Journal
-
March 04, 2009
Getting back what the devil stole from me!!!!
Well guys it has finally happened. I have made my way out of the "wilderness" so to speak. I have been through hell most of my life and I refuse to be a whiner/victim. I just take the blows/punches and build up my body to crisis. For the first time in over 10 years I actually weigh over 130 pounds! I am so happy. I actually have to excersise now! That wasn't even a thought for a while because I was so freaking frail. My finances are finally coming together. And now that I have more time to play and spend time with my kids, things are just looking really great for me! I am also with the most wonderful man I could ever dream about being with. I have been friends with him for over a year and a half and he knows everything about me. He knows about my condition. He knows about the colostomy bag. He makes me feel so beautiful and accepted. I almost feel "normal" if that's really even a legit word. I am so happy and I thank God CONSTANTLY for helping me with all of the trials and tribulations that he has gotten me through.
-
January 28, 2009
My "funny" ostomy bag story
Okay, when I first had my ostomy surgery, of course I had to wear the "clear" colostomy bag. It was so freaking GROSS to me. My boys were asking how it looked when I would have a bowel movement and I told them that at first it actually "farted" and then it would just squirt out. They actually wanted to witness this! So I could feel something "churning" in my stomach so I lifted my shirt and said, "Guys, I think it's about to happen." They ran over to me and sat down beside me on the couch, Christian my 4 year old and Kevin my 12 year old. All of a sudden it "errupted" and my 12 year old son said, "Oh my God that was awesome!" (he still thinks it's "cool" when it makes noise) and the look on my 4 year old son's face was PRICELESS. He looked like he was shocked/horrified, amazed and like he was about to run away at the same time. Me and my oldest son BUSTED OUT LAUGHING and my youngest son said, "How did it do that!?" It was the ONLY funny experience I have had since then.
-
July 17, 2008
I weigh 153 pounds now!!! Yay!!!!
I haven't weighed this much since 1998. Before my resectioning, I had got down to 118 pounds...very scary. Since I've had Crohn's disease, I could never gain weight...I wouldn't even get past 135 pounds. Since my colostomy surgery, the most I have weighed is 140 pounds and now I am up to 153...(i was actually 155 this past weekend!!! :o) but back to my point...) and I owe it all to God first and foremost and then Humira!!!! LOL...I really didn't think I would see an improvement this fast. I don't have to empty my bag as much as I used to and now when I eat, I am actually keeping some nourishment instead of all of the nutrients flowing right back out of my body. I just wanted to share this with you all and plus PRAISE God FOR KEEPING ME STRONG...I will try to get on here more often then I have been. Keep me in your prayers...I'm going through some financial difficulty but then again aren't we all? LOL...Love you guys!
-
July 17, 2008
I actually feel "normal" again
-
May 02, 2008
Update!!!!
Well I started Humira as you all know on last Saturday. I started charting my progress...making mental notes as to how many times I had to empty my bag. Monday, by 11:00 a.m., I had already emptied 8 times!!!!
Tuesday it started to get a little better, still emptying it frequently, but I could feel I was getting more energy.
Wednesday I noticed that I had only emptied it 3 times by 11:00 a.m.!!!
Yesterday (Thursday), people were complimenting me on how great I looked and how I had gained weight! Yay!!!
Today I weighed myself and I am 147 pounds! You can actually see the weight on me. I have been eating like a pig and I love every minute of it! I am just so glad that some (not all) of the food is actually staying with me.
If this controls the diarreah, I will ask my doctor have the colostomy reversed...that will be the only way. I can't suffer with pain, holding in diarreah and FISTULAS ever again.